Downers Grove Family Celebrates 5th Birthday While Raising Money and Awareness for Apraxia
Three years ago, Nevaeh was diagnosed with a neurological speech disorder called apraxia, something her mother, Nichole Latori, nor grandmother, Terri Murrin had never heard of. After spending the past three years researching the disorder and finding the best treatment for Nevaeh, Terri and Nichole decided to change this lack of awareness.
On September 12th and 13th they hosted an Apraxia Fund Raiser Yard Sale. They filled Terri's garage, front yard and 5 tents with items donated for sale. Every person who came to the sale was given information about Childhood Apraxia of Speech is very challenging and complicated neurological speech disorder in children. This little known disorder makes it difficult or impossible for children to accurately produce sounds, syllables, and/or words despite having a good understanding of language. The family raised $1,902.00 and a family member's company will be matching that amount. A total of $3,804.00 will be donated to the Walk for Children with Apraxia of Speech on Saturday, October 18th which also happens to be Nevaeh's 5th birthday. The Walk for Children with Apraxia of Speech is held across the country as a means to heighten awareness and funding. Proceeds from the walk will benefit the local apraxia programs through The Apraxia Connection and national programs and research of the Childhood Apraxia of Spreech Association of North America (CASANA).