Huntington’s needs Congress support
May is Huntington’s disease Awareness Month, and I am writing to strongly urge Congress to sponsor the Huntington’s disease Parity Act, If passed, it would make it easier for people with the disease to receive Social Security disability and Medicare Benefits.
Huntington’s disease is a hereditary, degenerative brain disorder for which there is, at present, no effective treatment or cure. HD slowly diminishes an individual’s ability to walk, talk and reason. Eventually, every person with HD becomes totally dependent upon others for his or her care. HD profoundly affects the lives of entire families — emotionally, socially and economically.
By co-sponsoring the Huntington’s disease Parity Act, members of Congress can show their support for not only for this family, but the nearly 1 million Americans who are touched by this terrible disease.
Tracy Miller
Lisle