Tracking your pregnancy on an app? Your employer could have access to that data
Like millions of women, Diana Diller was a devoted user of the pregnancy-tracking app Ovia, logging in every night to record new details on a screen asking about her bodily functions, sex drive, medications and mood. When she gave birth last spring, she used the app to chart her baby's first online medical data -- including her name, her location, and whether there had been any complications -- before leaving the hospital's recovery room.
But someone else was regularly checking in, too: her employer, which paid to gain access to the intimate details of its workers' personal lives, from their trying-to-conceive months to early motherhood. Diller's bosses could look up aggregate data on how many workers using Ovia's fertility, pregnancy and parenting apps had faced high-risk pregnancies or gave birth prematurely; the top medical questions they had researched; and how soon they had returned to work.
"Maybe I'm naive, but I thought of it as positive reinforcement: They're trying to help me take care of myself," said Diller, 39, an event planner in Los Angeles for the video-game company Activision Blizzard. The decision to track her pregnancy had been made easier by the $1 a day in gift cards the company paid her to use the app: That's "diaper and formula money," she said.
Period- and pregnancy-tracking apps such as Ovia have climbed in popularity as fun, friendly companions for the daunting uncertainties of childbirth, and many expectant women check in daily to see, for instance, how their unborn baby's size compares to different fruits or Parisian desserts.
But Ovia also has become a powerful monitoring tool for employers and health insurers, which under the banner of corporate wellness have aggressively pushed to gather more data about their workers' lives than ever before.
Employers who pay the apps' developer, Ovia Health, can offer their workers a special version of the apps that relays their health data -- in a "de-identified," aggregated form -- to an internal employer website accessible by human resources personnel. The companies offer it alongside other health benefits and incentivize workers to input as much about their bodies as they can, saying the data can help the companies minimize health-care spending, discover medical problems and better plan for the months ahead.
Emboldened by the popularity of Fitbits and other tracking technologies, Ovia has marketed itself as shepherding one of the oldest milestones in human existence into the digital age. By giving counseling and feedback on mothers' progress, executives said, Ovia has helped women conceive after months of infertility and even saved the lives of women who wouldn't otherwise have realized they were at risk.
But health and privacy advocates say this new generation of "menstrual surveillance" tools is pushing the limits of what women will share about one of the most sensitive moments of their lives. The apps, they say, are designed largely to benefit not the women but their employers and insurers, who gain a sweeping new benchmark on which to assess their workers as they consider the next steps for their families and careers.
Experts worry that companies could use the data to bump up the cost or scale back the coverage of health-care benefits, or that women's intimate information could be exposed in data breaches or security risks. And though the data is made anonymous, experts also fear that the companies could identify women based on information relayed in confidence, particularly in workplaces where few women are pregnant at any given time.
"What could possibly be the most optimistic, best-faith reason for an employer to know how many high-risk pregnancies their employees have? So they can put more brochures in the break room?" asked Karen Levy, a Cornell University assistant professor who has researched family and workplace monitoring.
"The real benefit of self-tracking is always to the company," Levy said. "People are being asked to do this at a time when they're incredibly vulnerable and may not have any sense where that data is being passed."
Ovia chief executive Paris Wallace said the company complies with privacy laws and provides the aggregate data so companies can evaluate how their workforces' health outcomes have changed over time. The health information is sensitive, he said, but could also play a critical role in boosting women's well-being and companies' bottom lines.
"We are in a women's health crisis, and it's impacting people's lives and their children's lives," he said, pointing to the country's rising rates of premature births and maternal deaths. "But it's also impacting the folks who are responsible for these outcomes -- both financially and for the health of the members they're accountable for."
The rise of pregnancy-tracking apps shows how some companies increasingly view the human body as a technological gold mine, rich with a vast range of health data their algorithms can track and analyze.
Companies pay for Ovia's "family benefits solution" package on a per-employee basis, but Ovia also makes money off targeted in-app advertising, including from sellers of fertility-support supplements, life insurance, cord-blood banking and cleaning products.
Milt Ezzard, the vice president of global benefits for Activision Blizzard, a video gaming giant that earned $7.5 billion last year with franchises such as "Call of Duty" and "World of Warcraft," credits acceptance of Ovia there to a changing workplace culture where volunteering sensitive information has become more commonplace.
In 2014, when the company rolled out incentives for workers who tracked their physical activity with a Fitbit, some employees voiced concerns over what they called a privacy-infringing overreach. But as the company offered more health tracking -- including for mental health, sleep, diet, autism and cancer care -- Ezzard said workers grew more comfortable with the trade-off and enticed by the financial benefits.
"Each time we introduced something, there was a bit of an outcry: 'You're prying into our lives,' " Ezzard said. "But we slowly increased the sensitivity of stuff, and eventually people understood it's all voluntary, there's no gun to your head, and we're going to reward you if you choose to do it."
With more than 10 million users, Ovia's tracking services are now some of the most downloaded medical apps in America, and the company says it has collected billions of data points into what it calls "one of the largest data sets on women's health in the world."
Ovia's corporate deals with employers and insurers have seen "triple-digit growth" in recent years, Wallace said. The company would not say how many companies it works with, but the number of employees at those companies is around 10 million, a statistic Ovia refers to as "covered lives."
Ovia pitches its app to companies as a health-care aid for women to better understand their bodies during a mystifying phase of life. In marketing materials, it says women who have tracked themselves with Ovia showed a 30 percent reduction in premature births, a 30 percent increase in natural conception, and a higher rate of identifying the signs of postpartum depression. (An Ovia spokeswoman said those statistics come from an internal return-on-investment calculator that "has been favorably reviewed by actuaries from two national insurance companies.")
But a key element of Ovia's sales pitch is how companies can cut back on medical costs and help usher women back to work. Pregnant women who track themselves, the company says, will live healthier, feel more in control, and be less likely to give birth prematurely or via a C-section, both of which cost more in medical bills -- for the family and the employer.
Women wanting to get pregnant are told they can rely on Ovia's "fertility algorithms," which analyze their menstrual data and suggest good times to try to conceive, potentially saving money on infertility treatments. "An average of 33 hours of productivity are lost for every round of treatment," an Ovia marketing document says.
For employers who fund workers' health insurance, pregnancy can be one of the biggest and most unpredictable health-care expenses. In 2014, AOL chief executive Tim Armstrong defended the company's cuts to retirement benefits by blaming the high medical expenses that arose from two employees giving birth to "distressed babies."
But some health and privacy experts say there are many reasons a woman who is pregnant or trying to conceive wouldn't want to tell her boss, and they worry the data could be used in a way that puts new moms at a disadvantage.
"The fact that women's pregnancies are being tracked that closely by employers is very disturbing," said Deborah Peel, a psychiatrist and founder of the Texas nonprofit Patient Privacy Rights. "There's so much discrimination against mothers and families in the workplace, and they can't trust their employer to have their best interests at heart."
Ovia's soft pastels and cheery text lend a friendly air to the process of transmitting private health information to one's employer, and the app gives daily nudges to remind women to log their progress with messages such as, "You're beautiful! How are you feeling today?"
But experts say they are unnerved by the sheer volume and detail of data that women are expected to offer up. Pregnant women can log details of their sleep, diet, mood and weight, while women who are trying to conceive can record when they had sex, how they're feeling, and the look and color of their cervical fluid.
After birth, the app asks for the baby's name, sex and weight; who performed the delivery and where; the birth type, such as vaginal or an unplanned C-section; how long labor lasted; whether it included an epidural; and the details of any complications, such as whether there was a breech or postpartum hemorrhage.
The app also allows women to report whether they had a miscarriage or pregnancy loss, including the date and "type of loss," such as whether the baby was stillborn.
Much of this information is viewable only by the worker. But the company can access a vast range of aggregated data about its employees, including their average age, number of children and current trimester; the average time it took them to get pregnant; the percentage who had high-risk pregnancies, conceived after a stretch of infertility, had C-sections or gave birth prematurely; and how soon the new moms had returned to work.
Companies can also see which articles are most read in Ovia's apps, offering them a potential road map to their workers' personal questions or anxieties. The how-to guides touch on virtually every aspect of a woman's changing body, mood, financial needs and lifestyle in hyper-intimate detail, including filing for disability, treating bodily aches and discharges, and suggestions for sex positions during pregnancy.
The company says it does not do paid clinical trials but provides data to researchers, including for a 2017 study that cited Ovia data from more than 6,000 women on how they chose their obstetricians. But even some researchers worry about ways the information might be used.
"As a clinician researcher, I can see the benefit of analyzing large data sets," said Paula Castaño, an obstetrician-gynecologist and associate professor at Columbia University who has studied menstrual-tracking apps. But a lot of the Ovia data given to employers, she said, "raise concerns with their lack of general clinical applicability and focus on variables that affect time out of work and insurance utilization."
Diller, the Activision Blizzard employee, said she was never troubled by Ovia privacy worries. She loved being able to show her friends what size pastry her unborn daughter was and would log her data every night while lying in bed and ticking through her other health apps, including trackers for food, sleep and "mindfulness."
When she reported the birth in Ovia, the app triggered a burst of virtual confetti and then directed her to download Ovia's parenting app, where she could track not just her health data but her newborn daughter's, too. It was an easy decision. On the app's home screen, she uploaded the first photo of her newly expanded family.