Supporting the mental health of children with heart conditions

Whether a child is born with a heart disease, or develops a heart condition later in life, it can impact their social and emotional well-being.

Frequent medical appointments, surgeries, hospital stays and physical limitations may lead to feelings of fear, stress, frustration, resentment and social isolation from peers and siblings.

In fact, research published by the American Heart Association suggests children with complex heart abnormalities are five times more likely to be diagnosed with an anxiety disorder during their lifetime, yet many go untreated.

All of these feelings are completely understandable — and can be treated too. If your child has a heart condition, here are some tips to support their mental health and improve their overall well-being.

• Provide verbal praise for their efforts of their health, such as taking their medication on time, or showing bravery at the doctor’s office. A chronic illness can be frustrating for children and teenagers, as they often feel powerless over their health. Providing verbal praise of their efforts will acknowledge their difficulties, validate their frustrations, and provide recognition of their efforts, which can boost motivation.

• Check in regularly with your child. Children with heart conditions often face mental struggles that may not be visible, so it’s crucial to provide them with opportunities to express their feelings and feel understood.

• Allow your child to be involved in their plan of care when possible. Encourage them to ask questions during appointments, help educate them on their condition and show them how to be their own advocate. Starting this at a young age will help instill confidence in your child that will help them better manage their health as an adult. This can be especially beneficial for teenagers as they explore opportunities for independence.

• Acknowledge the ways in which their life experience sometimes looks different from that of their peers. While our goal is always to give children with heart conditions as typical of a life as possible, they may still face more missed school days, less traditional playtime, frequent hospital stays, physical activity restrictions or developmental delays. This can lead to anger, resentment, jealousy and social withdrawal, among other emotions.

Remember that heart conditions can be hard on the entire family. Ensure you are caring for and checking in on your own mental health as well as the mental health of your other children. Join support groups and seek out other families and peers who understand your experience. Your child’s care team can help bridge connections to resources.

Mental health support is vital for children with heart conditions. At Advocate Children’s Hospital, we recognize the relationship between mental and physical health, especially for children with heart conditions that require lifestyle changes. That’s why our expert heart care team includes specialists in behavioral, educational, and mental health, ensuring comprehensive care for a healthier life. We’re here to support your family every step of the way.

• Children’s health is a continuing series. This column was provided by Advocate Children’s Hospital. Gabrielle Sanchez is a psychologist at Advocate Children’s Hospital.