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posted: 1/18/2013 10:57 AM

Hawthorn Woods event to benefit medical research

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  • Video: Trailer for rare disease film

Submitted by Kerry Hughes

A documentary film designed to raise awareness for rare disease will be shown at a fundraiser for medical research 6 p.m. Friday, Jan. 25, at Hawthorn Woods Country Club, that will also feature music, and food and drink.

"Rock the Reel" is the latest event organized by Kerry Hughes, a teacher and Lori Butler, a medical marketing professional, two women who share a passion for combating rare diseases.

Jenniffer Weigel, of The Chicago Tribune, will be the master of ceremonies at the event, which will feature a screening of The Ewing Marion Kauffman Foundation Film, "Here. Us. Now. -- A Family's Fight to Bring Medical Innovation Home." Live music will be performed by the band "Out of Storage."

Chicago-based CorDynamics is the leading sponsor of the event along with a handful of other businesses from Lake Zurich, Hawthorn Woods and North Barrington.

Proceeds support the Alternating Hemiplegia of Childhood Foundation, and the Two Hearts Rock/Global Genes "Be An Instrument of Hope" Campaign.

Alternating Hemiplegia of Childhood is a rare neurological disorder in which repeated, transient attacks of paralysis of a portion of the body, including the face occur. Kiley Andrasco, 11, of Lake Zurich is one of 600 people in the world diagnosed with AHC.

The country club is at 1 North Tournament Drive in Hawthorn Woods. The ticket cost is $52 in advance, $60 at the door

For more information, go to the website or contact Lori Butler at or (847) 567-9599 or Kerry Hughes at or (847) 204-2336.

For information about the thousands of rare diseases, visit the website To learn more about AHC, visit